The lycos Search engine is a great place to start your search. When you get to the site simply type in the name of the disease you are looking for. It will give you a good number of possible web pages to check out.
The Health On the Net Foundation (HON), created in 1995, is a not-for-profit International Swiss Organization. HON's mission is to guide lay persons or non-medical users and medical practitioners to useful and reliable online medical and health information.. Once you type in the name of the disease you are looking for this site will give you many sites with accurate, up to date, and technical information.
Internet Resources for Special Children (IRSC) web site. The IRSC web site is dedicated to communicating information relating to the needs of children with disABILITIES
This web site is sponsored by the March of Dimes which is an organization the is working to promote better health for babies and to reduce the birth defect rate of this country.
The last site I would like to list is actually a search engine. (Program that helps you find things on the Internet.) It's really fast and very accurate in finding information over those hard to find things.